Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 15, diagnosed with Prader-Willi Syndrome and Weston 18, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.




Saturday, December 18, 2010

An Army of Cookies

Weston, Nicholas and I decided to bake our cookies for Christmas today.

Doesn't this look like an army of cookie soldiers? Is there anything better in this world than the sight and smell of freshly baked cookies? Yummmm!


Of course we had to know the whereabouts of Muffy, our Beagle dog, at all times. Baked goods are one of her favorite snacks to swipe off the counter while no one is looking. See my post titled: Like Children, Like Dog to read about Muffy's cornbread charade.

Surprisingly, Nicholas was not interested in hanging around while I was baking. This is unbelievably unusual for a child diagnosed with PWS. He disappeared upstairs with his backpacks and Garfield DVD.

This was a good thing, It gave me a chance to wrap up the cookie treats and lock them out of sight. Nicholas will definitely become interested later and could... like Muffy, eat all of them while no one is watching.

One of the dangers of living with someone diagnosed with PWS is that enjoyable events like baking cookies can be deadly. Cookies must be quickly wisked away to prevent behavioral meltdowns or life threatening overeating. Living with PWS is horrible. Imagine living with a disease where baked cookies left unattended could cause a child to die?

It is very rare that I bake anything, ever.

We decided this year that we would bake cookies to give to the many paraprofessionals that assist my children at school. There are speech therapists, physical therapists, occupational therapists, behaviorists, social workers, and special ed teachers...too many to count. All of who contribute to improving the lives of my children. Too many to buy for....so cookies it is. Baked and quickly hidden out of sight.

Of course, it's probably a good thing that I do hide the cookies...since chocolate chip cookies are also one of my husband Pete's favorite treats.

I don't know who's worse....Muffy, Nicholas or Pete?

It's probably a good thing the cookies look like soldiers.

4 comments:

Adelaide Dupont said...

Chocolate chips are great for many people.

(And you can vary the recipe to taste. For example, I might well like cinammon and ginger).

I'll definitely read Like children, like dog.

The Henrys said...

Those cookies look soooo goooood!!

I'm glad that you had some good times baking, and that Nicholas didn't have a hard time with it.

Terry said...

says... Those cookies look delicious. We will have to remember that for next year. My wife created little treat bags with personal notes for the bus drivers, helpers, teachers, aides, therapists, ect... Yikes!

I love your Blog and I read another great article today, titled "I'm No Expert", on the cover of the Gathered View. And you write for Hopeful Parents??? I hope you're getting some compensation for all you're writing... For the new house.

Lisa said...

Oh Terry...thank you so much for your comments. I am so glad you like the blog. I am still very new to all of this.

Oh how I wish I was compensated for writing...so far, it has all been done pro bono! But I can't complain since it is such good therapy for me. Although it would be nice to have funds accumulate for the PWS estate. I am still hopeful!

Post a Comment