Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 15, diagnosed with Prader-Willi Syndrome and Weston 18, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.

Friday, December 17, 2010

The Trouble with Superheroes

In a previous post titled, "I'm no Expert" I have compared parenting a child with special needs to becoming a superhero.

We share many of the same attributes:

We feel a fierce sense of responsibility to fight bravely and advocate strongly for those we love.

We are fearless in our ability to take on the most horrific and frightening of adversaries.

We conceal our true identities.

But what I have come to realize about superheroes....is that they have troubles too....big ones!

* They can never go back to being the old human being they once were....ever!

* Family and friends do not understand why they are different.

* Superheroes are often questioned and criticized for their heroic actions.

* Many other folks want to be saved too and do not understand the superhero's need to focus only on their child and his/her needs.

* Loved ones do not understand how to support a superhero. They do not understand the critical need for rest and rejuvenation, a quiet time that is void of issues.

* No one knows how to help a superhero.

* No one knows how to thank a superhero.

* No one knows how to love a superhero.

* No one understands the difficulties of living a life devoted entirely to saving an innocent victim from a devastating disease.

* No one understands the physical, emotional and spiritual baggage that comes from being trusted with this  most precious responsibility. 

Living a life as a parent of two children diagnosed with special needs, I am often reminded of Winston Churchill's insightful words....

"With greatness comes great responsibility."

I think it should read......."With great responsibility comes greatness."

1 comment:

The Henrys said...

This is so true! It can be so hard dealing with family when they just don't understand. It's frustrating because they could at least try, if they wanted to...I know they have issues and struggles too, but to completely dismiss ours is very insensitive!

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