Our Journey Raising Two Children with Special Needs
This blog chronicles our life raising two children, Nicholas 14, diagnosed with Prader-Willi Syndrome and Weston 17, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.
Friday, October 8, 2010
These plastic shoe inserts are manufactured by John, the same orthotist professional who makes Nicholas's back brace (or Franklin shell).
We had an appointment today to refit Nicholas for a new Franklin shell. We have been visiting with John for almost 8 years. At our appointment he was his usual self, tickling, laughing and adeptly distracting Nicholas as he takes the many measurements needed to design these plastic devices. In fact, most of the doctors and specialists that follow Nicholas share this unique characteristic.
It was then that it occurred to me. We have developed some wonderful friendships with many of the doctors and specialists that have followed Nicholas throughout the years. I realize that I see some of these professionals more than I see some of my own aunts, uncles, and cousins. When you are the parent of a child with special needs, you come to rely on these professionals. You rely on them for their knowledge, their skill and their constant support. They are the true healers in this world and without them, my son's life would not be as fulfilled. I am thankful that they are all in our lives.
These professionals have truly become like family members.