Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 14, diagnosed with Prader-Willi Syndrome and Weston 17, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.

Tuesday, December 21, 2010


It's official.

My Mom has just had her phone privileges revoked.

As some of you may recall, my mother has been diagnosed with dementia. She is living in an assisted living facility that specializes in the care of patients diagnosed with this disease. She has been living here for about a year.

One of the drawbacks of my mother's stay, was her incessant telephone calling of all her children. Morning, noon, night, weekends, all of us would receive calls, hundreds of them, since she could not remember that she had already called us. Our answering machines and cell phones quickly filled to capacity with calls from our mother. Every day several times a day, we would need to delete hundreds of messages. We siblings had to do some shifting of our available phone numbers, finally giving her only our cell numbers so that we could manage "the constant calling" and deleting.

At first, it was difficult to handle, the ringing (oh, the ringing) but after a while, we all got used to the constant flurry of calls and would try our best to ease our mother's anxiety and let her know we would be coming to visit her soon. And just when you thought you had eased her suffering...


She would call again, forgetting the conversation she just had with us just 5 minutes ago.

So after all of that, after all our hard work, our patience and tolerance for ringing, my mother's phone has been abruptly removed by the assisted living facility.

Why, you may ask?

Well, I guess, she finally figured out how to call 911.

Yep, fire trucks blaring, police lights flashing as emergency vehicles roared up to the assisted living facility. Only to discover, a tiny sweet, little old lady, who forgot she had called them.

Pretty bad huh? Well guess what?

She did it again.

Once again, the cavalry to the rescue. And once again a tiny sweet little old lady wondering why they were there.

She did it four times!

Well that did it for the facility. Her phone privileges were revoked.

I am sure they were charged for an unnecessary emergency call.

I am sure will we see the charge on our next bill.

So without further ado, the telephone has been removed from my mother's room.

I must admit, it is very strange not hearing a telephone ring and ring and ring.

I must admit, the quiet is deafening and makes me miss my mother.

Snow, Glorious Snow

Well, we here in New England missed our first Nor'easter.....as it blew out to sea and left us all disappointed that we missed our first "foot of snow" and chance for a white Christmas. It was so disappointing since our local weather forecasters had been predicting "a ton of snow" from the highly anticipated first snow of the season.

They were wrong.

This morning however, once again the weather folks were wrong as we all woke up to a dusting of snow. It seems that same storm system that blew out to sea has slid backwards and into the New England area giving us all at least and inch or 2 of snow.

Weston, my nature boy, is always the first outside and into the cold to enjoy the snow! He loves it. Notice he has no gloves on......ahhhhh!

Here he is, plowing the walkway with his "front loader". Yes, I know all of the names of the heavy equipment used to plow, dig, scrape and roll, dirt and snow, thanks to a "Hard Hat Harry" video we have watched a thousand times. Alas, the life of a mother with boys!

I think the only one who was not happy about the snow was Muffy, I think she needs a warmer coat.

Once again our weather forecasters are predicting another "whopper storm" for Christmas weekend.
We'll see how much we get this time.......

Happy Holidays to all......wishing you all a white Christmas!