Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 15, diagnosed with Prader-Willi Syndrome and Weston 18, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.




Friday, April 8, 2011

Self Portrait

Today, Mrs. M, gave me this.....


It is a self portrait and hand print of Nicholas.

Children diagnosed with Prader Willi Syndrome have difficulty developing fine motor skills. Low muscle tone makes it difficult for them to grasp crayons or pencils.

Keeping pressure on his writing device and tracing an object is very tiring for Nicholas. This outline of his hand took him a long time to complete.

When I saw this drawing, I was thrilled. It has been difficult for Nicholas to draw a circle for a head. This drawing not only shows his head, but eyes and glasses, nose, mouth and feet too. Notice how he drew his foot braces (or "magic shoes" as he calls them) on his feet?  The body...almost under his neck. The hair too...almost on his head!

Weston took one look at Nick's drawing and exclaimed....

"Nicholas, you look like a skeleton!" and he ran into the living room.

2 comments:

GB's Mom said...

So much for sibling support!

JMB said...

Awesome drawing, Nicholas! And aren't siblings wonderful, they always make the "best" observations about things...I hope Nicholas didn't mind Weston's critique!

Sophie does okay with pencils, but does NOT enjoy coloring. I dread the days she has a homework sheet involving coloring...I'm always on the edge of my seat, praying we get through it and she finishes it without having a meltdown. Having to put prolonged pressure on a crayon to finish a homework sheet is NOT her favorite activity.

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