Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 15, diagnosed with Prader-Willi Syndrome and Weston 18, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.

Tuesday, May 24, 2011

Chewlery to the Rescue

As you all know, Weston is filled with energy up to his ears. His energy level is so high it is actually destructive to his ability to learn and develop socially. After many lost school years and failed medication trials, we found one that has undoubtedly saved my son's life. It is called Vyvance. On this medication my son is relaxed and happy and able to engage with others appropriately. I will forever be grateful to the manufacturers of this product since it has made such an improvement in the quality of my son's life.

Unfortunately for Weston however, his metabolism runs so high he burns through even the long-acting doses of this medication. So by evening time Weston's motor is once again running on overdrive. When this happens, he starts to chew on his shirts. This has always been a helpful indicator to me whether a medication was effective or not throughout the day.

We have always tried to endure Weston's night time "wiggles" since we have not been successful in finding a medication that lasts 24 hours.

As a result, most of Weston's t-shirts look like this....

This is actually one of the good ones....

I have found a very helpful product that I wanted to share with all of you. It's called chewlery. And it looks like this...

It is a very stretchy plastic-like material that kids wear as a necklace. They chew on the necklace instead of the shirt. I have saved a bundle on t-shirts by purchasing this product. Weston likes it because, much like an ipod, it helps him to focus. He likes the cool colors and the chewiness of the necklace. It is available from a company called Abilitations, The website:  http://www.abilitations.com/.

Now if only they came in different flavors...I might wear one too.

1 comment:

Cecilia Cruise said...

Hi Lisa:
Happened to catch this blog from last week and have looked over your other info as well. What a special mom you are to these two boys and thanks for spreading the word about Abilitations and especially our Chewlery line of products! You can find them here!
Also we would like to invite you to join us at My Special Needs Network as this is our place to network with other parents and professionals raising and/or working with children with special needs. You can find us at: /www.myspecialneedsnetwork.com
Best wishes for success to Nicholas and Weston.
Warm regards,
Cecilia Cruse, MS, OTR/L
Abilitations Education Manager

Post a Comment