Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 15, diagnosed with Prader-Willi Syndrome and Weston 18, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.




Friday, June 10, 2011

Summertime and Sprinklers

Yesterday was in the 90's and very humid here in the Boston area.

For children diagnosed with PWS, this can be dangerous. The hypothalamus, the area of the brain that is affected by PWS, also controls body temperature regulation. So, when it is very hot (or very cold for that matter) individuals diagnosed with PWS have trouble regulating their body temperatures. Hyperthermia in the summer and hypothermia in the winter can easily occur.

The elementary school that Nicholas attends does not have air conditioning, so I kept him home from school. Of course, since Pete is an HVAC mechanic, our home is properly outfitted with the much-welcomed cooling equipment.

When Weston got home from school, both boys begged to go in the sprinkler. Now, I do not know about all of you, but we must have gone through about 50 garden hose sprinklers in the last year alone. They break, they clog, they never seem to work properly.

So, in a flash of brilliance, I decided to turn on the lawn irrigation system. I turned on only one zone which has about 4 sprinkler heads. The boys loved it. The water pressure was like a light mist. Weston and Nicholas zigged-zagged in and out of the four cooling water spouts.

Last year, Nicholas was very hesitant about running through the sprinkler and getting cold and wet. This year, I am happy to report...is a very different story. He is a running fool, a mad man. I have never seen my young son run so much in his entire life. And of course with a smile on his face that never left.

Weston, always looking for helpful sensory tools, used his winter ski helmet so that he wouldn't get too much water in his ears. I am amazed at his ability to know what he needs and not worry about what he looks like!
Check out these funny photos.

They both had a ball!


Weston goofing and Nicholas running

and running

and running

Double dip
more running

more goofing

helmet goofing

Nicholas finally collapsed into our "Kmart special" wading pool

Brothers......

2 comments:

JMB said...

Wonderful photos, they definitely look like they are having fun!!

Lisa said...

Thanks Jen, I do love these photos too. They had so much fun, I ran through a few times myself.

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