Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 14, diagnosed with Prader-Willi Syndrome and Weston 17, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.




Saturday, April 30, 2011

Thanking Elizabeth and Ending Epilepsy

I know I talk a lot about the difficulties and challenges associated with raising a child with special needs. But there are also some very special gifts that I do not mention as often (why is that?).

Anyway, one of these special gifts is meeting other parents who also have children diagnosed with special needs. Most of these individuals, I have never met, and yet we share a bond of brotherhood. We have become like a sorority of soldiers. We are bonded by fate instead of birth, and although we do not share the same blood, we have shed much of it together on the special needs battlefields fighting some terrible beasts.

Elizabeth is one of these special individuals. She is a talented and prolific writer. She is one of the monthly bloggers at Hopeful Parents. (Check out her posts at http://www.hopefulparents.org/) She has published many articles and been a featured author in A Cup of Comfort for Parents of Children with Special Needs. She is a voracious reader, a baker, a sous chef and one hell of a blogger, check out her amazing and inspirational blog at http://www.amoonwornasifitwereashell.blogspot.com/.

Wordle: a moon


She is the mother of three beautiful children and is a fierce advocate to end epilepsy on behalf of her daughter Sophie.

About a year and a half ago she participated as a board member with the Epilepsy Foundation of Greater Los Angeles in a presentation to an organization called Women in Film. Along with two other women she told her story of Sophie, her diagnosis and their life together living with a seizure disorder. She had them moved to tears.

Her organization won the grant and Women in Film produced this amazing and very intense public service announcement. There are four of these videos. This is a campaign to END EPILEPSY. They will be featured on national television. To view the three other videos, go to YouTube and search END EPILEPSY.

So to honor this important campaign, to honor Sophie and Nicholas, and most importantly to thank Elizabeth for her contribution in creating this amazing awareness campaign.....here is one of the videos.


Thank you Elizabeth!