For children diagnosed with PWS, this can be dangerous. The hypothalamus, the area of the brain that is affected by PWS, also controls body temperature regulation. So, when it is very hot (or very cold for that matter) individuals diagnosed with PWS have trouble regulating their body temperatures. Hyperthermia in the summer and hypothermia in the winter can easily occur.
The elementary school that Nicholas attends does not have air conditioning, so I kept him home from school. Of course, since Pete is an HVAC mechanic, our home is properly outfitted with the much-welcomed cooling equipment.
So, in a flash of brilliance, I decided to turn on the lawn irrigation system. I turned on only one zone which has about 4 sprinkler heads. The boys loved it. The water pressure was like a light mist. Weston and Nicholas zigged-zagged in and out of the four cooling water spouts.
Last year, Nicholas was very hesitant about running through the sprinkler and getting cold and wet. This year, I am happy to report...is a very different story. He is a running fool, a mad man. I have never seen my young son run so much in his entire life. And of course with a smile on his face that never left.
Weston, always looking for helpful sensory tools, used his winter ski helmet so that he wouldn't get too much water in his ears. I am amazed at his ability to know what he needs and not worry about what he looks like!
Check out these funny photos.
They both had a ball!
Weston goofing and Nicholas running
Nicholas finally collapsed into our "Kmart special" wading pool