Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 14, diagnosed with Prader-Willi Syndrome and Weston 17, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.




Sunday, October 2, 2011

To Nicholas, There is Nothing Better Than Halloween

Halloween is Nicholas's favorite time of year. To him, it is a magical day.

It is a time for carving pumpkins and placing small candles inside that flicker and glow.

It is a time to decorate the house and begin the long countdown to Christmas.

It is time to make believe.

Today was a rainy day in the New England area and Nicholas was moping around the house. Boredom is especially difficult for children diagnosed with Prader Willi Syndrome. Idleness makes them think even more about food. Most of our days are spent keeping busy to prevent those dreaded words...

"Mom, I'm hungry."

But thankfully today is a little different,

"Mom, I'm bored," he announces. This is a new middle school phrase he has learned from his brother and I am thankful for the reprieve.

"Well, I have an idea," I say to my moping, young son.

"What?" Nicholas asks, his eyes starting to widen.

"Let's decorate the house for  Halloween!"

"REALLY!" he answers, and I swear he is about to have a heart attack right there in the family room.

"YEAH" I reply and head to the hall closet where I keep all our Halloween decorations.

"Oh Goody," Nicholas claps his hands and starts to jump for joy.

As I pull down the box, Nicholas is bouncing like a jumping bean.

"It's going to be the best Halloween ever!" he announces with all his heart.

Together we slowly work our way around the house placing the usual decorations in the usual spots.

There is the pumpkin, the lights and the Halloween wreath that go in the front hallway.



The glowing pumpkin...which usually moves about the house from room to room with Nicholas.



The silly, scary ghost that sits outside.


And last but not least the lighted pumpkin that goes on the front door.


Nicholas followed me like a faithful puppy dog as we spread some Halloween magic throughout the house.

"Oh Mom," Nicholas says when we are done, "You made me sooo happy!"

Halloween magic!
The mini pumpkin Dad helped Nicholas to carve.
Every night he brings it to bed and places it on his bureau to watch him sleep.