The State of Connecticut announced today that it will fund $9.8 million in grant money to 19 stem cell researchers in the state. One of those researchers is Stormy Chamberlain, PhD, an assistant professor of genetics and developmental biology at UConn Health Center.
Dr. Chamberlain explains,
"The state funding really helps rare diseases because the foundations that
typically fund their research are limited," she said, adding that support often
is limited to fundraisers organized by families of those with the
Dr. Chamberlain is correct. Fundraising for PWS is almost exclusively performed and coordinated either through national and state PWS organizations or by families of diagnosed individuals. Since it is such a rare disorder, few folks are aware of this syndrome. This effects the ability of these organizations to raise the much-needed funds to help find a cure for this disease that causes an individual to develop an insatiable appetite.
So, on behalf of all individuals diagnosed with PWS and their families, thank you Connecticut and thank you Stormy Chamberlain, PhD. Bravo!
To learn more about Stormy and her motivation for working with PWS, click here.
We are so very grateful!
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