Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 15, diagnosed with Prader-Willi Syndrome and Weston 18, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.

Saturday, August 25, 2012


As summer winds down to its last few weeks, Weston has asked Pete for a little one-on-one vacation time together.

Hubby works in the commercial HVAC trade in Boston. As you would expect, summer is their busy time of year. As a result, Pete has worked many weekends, leaving both boys home alone with Mom for most of the day.

While Weston has been tolerant of his mother and her feminine energy, it is Dad's more masculine spirit that he craves. I encourage this male togetherness as I believe spending more time with Pete is helpful to Weston in enabling him to understand more about himself and his journey to become a man.

Throughout the summer Weston has also been very tolerant of Nicholas. He happily slows his life pace to accommodate the special needs of his younger brother. He does this without complaint.

But there are just some times, when a man has to do what a man has to do....and Weston needed some "Dad Time". He asked his Dad while we were having dinner one night.

"Dad, would it be OK if you and I spent some time together before summer is over?" he asked.

"No offense, Mom," he added.

Pete explained to Weston that it is very difficult for him right now to get some time off, but he would try.

Sure enough, Friday rolled around, and the chance came once again for some easy overtime. This was a difficult decision for Pete since as a family we could really use the extra bucks right now to help ease the cost of the attorney we are paying to help us with Nicholas's school issues. After much thought Pete decided,

"Weston needs me,"

So the two men are up in the mountains of New Hampshire hiking, biking and doing all things manly.

Weston at the Railroad Museum in Gorham, NH
For more information about Gorham and the museum, click here.
As for Nicholas, he is fluttering happily around the house with no big brother teasing him or taking his toys. His shoes are off, my closets are emptied and he is happy too.