Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 14, diagnosed with Prader-Willi Syndrome and Weston 17, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.




Tuesday, February 19, 2013

Jammin' to the Beat of a Different Drummer

My two children could not be more different.

Weston is powered by high octane rocket fuel. He runs, jumps, slides and whizzes through life at the speed of light. He acts first and thinks later. His favorite activity is making noise and lots of it.

Nicholas, on the other hand, is slow moving and gentle. He likes to play quietly in the living room. He has a big heart and enjoys playing the role of a caretaker.

But despite these differences, Nicholas longs to be like his older brother.

He has worn scary costumes on Halloween.



He has willingly participated in Weston's "War Game" antics.


He has even played the drums like a rock star just to please his older brother.



 But most recently, Nicholas has begun to emulate Weston's love of music.

A few years ago, we bought Weston an Ipod for Christmas. What we discovered, quite by accident, was that this device was actually a pretty darn good calming tool for the hyperactive Weston. We have used it to help him to focus during dinner, difficult homework assignments and visits to local restaurants. He uses it in noisy environments to drown out offensive sounds. It has been like a life saver to Weston.



As the ever-adoring little brother, Nicholas has decided, once again, to emulate his older brother. And although the calm Nicholas does not require any assistance in cooling his jets, I found him yesterday, wearing this...


He placed a toy portable CD player around his neck. He attached an errant pair of Weston's headphones into the device and voila.......a makeshift Ipod!

And, while big brother Weston roamed around the house dancing and singing at the top of his lungs to Twisted Sister...

"We're not going to take it! No! We're not gonna to take it! We're not going to take it anymore.....!"

 His adoring little brother followed closely behind singing softly to the soothing sounds of Peter, Paul and Mary...

"Puff, the Magic Dragon, lived by the sea, and frolicked in the autumn mist in a land called Honah Lee! Ooh..."