Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 14, diagnosed with Prader-Willi Syndrome and Weston 17, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.




Monday, August 5, 2013

A Reluctant Patient and a Faithful Sidekick

Weston is scheduled tomorrow for an endoscopy/colonoscopy procedure.

Where will this take place? Why at Children's in Boston, of course. Perhaps we should consider purchasing our own parking space in the hospital garage? Once again we will drop some serious coin on parking fees and cafeteria food.

In an unusual display of  role reversal, Weston will be the reluctant patient while the faithful Nicholas will serve as his supportive sidekick. This should be interesting.

As I mentioned in previous posts, Weston has been suffering from chronic diarrhea. It has caused a great deal of stress in his life since he must always be conscious of the exact location of the nearest bathroom. School is particularly difficult for him. Like most kids his age, he prefers to avoid the "boy's room" at all cost and will use this despised setting only in cases of dire emergency.

We need to get to the bottom of this and soon....oops, pardon the pun!

Weston's previous GI tests and appointments have ruled out any of the more typical intestinal ailments. This in-depth scoping will hopefully provide us with a more definitive explanation of what exactly is causing his troubles. Hopefully, there will be a suitable treatment plan that will provide him with some much needed relief.

Today, we are following the "clean out" procedure. He is only allowed clear liquids to drink and nothing to eat for over 24 hours. Trust me when I say...this is not conducive to good behavior in a child diagnosed with ADHD.

We are doing our best. Thankfully, hubby is home early and trying to distract Weston from his overwhelming hunger.

Nicholas is very impressed that the brave Weston will be enduring an IV procedure and will not be wearing his underware!

Weston's appointment is at 9 am, the height of Boston rush hour traffic.

So......you know what that means......
              Me                                                                           Pete