Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 14, diagnosed with Prader-Willi Syndrome and Weston 17, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.




Thursday, May 23, 2013

No Momsense

For the past 14 years, when it comes to my children and their health care...

 I am a No Nonsense Woman.

I have scurried them to hundreds of visits with doctors, therapists, and specialists, all in an effort to allow them to enjoy a  happy and healthy life.

I am like a Health Care Machine.

Unfortunately, however, I have not applied this same heightened level of health care mania to myself.

When it comes to me, I am a No Momsense Woman.

I put myself and my needs on a shelf, so I can better care for my children.

I have realized, lately, that this principle is not a sound one, since I am the soul caregiver of my boys. If something happens to me....who will be there to care for them?

The answer is frightening, and suddenly I realize that I need to do a much better job of caring for myself. I need to apply the same level of health care machine mania to myself.

I need to make a valiant and heroic effort to care for my own physical, emotional and spiritual health.

So, for the past few weeks, I have begun to make some personal changes:

I am eating better.

I am exercising.

I am trying to find some quiet time to myself every day, doing things like meditating, listening to music, and reading.

I am following up with all necessary doctor and dental appointments.

I am trying NOT to make drastic changes, but rather incorporate healthier habits into my busy lifestyle. As much as I want to believe there is no time during my hectic schedule for myself, there truly is, all it takes is a shifting of priorities....which has never been one of my strong points.

I must say, at first this new caring for myself attitude felt uncomfortable, but I am beginning to see some benefits already. I feel healthier and relaxed. I feel like for the first time I have empowered myself and unlocked a door I had closed for a very long time.


I am committed to caring for myself, so that God willing, I will be able to happily care for my children for a very long time.