Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 14, diagnosed with Prader-Willi Syndrome and Weston 17, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.




Sunday, December 7, 2014

Return of the Roaring, Red Firetrucks and the Red-Suited Man

If you are a long time reader of our blog, you may remember that every year Santa Claus makes a rather unusual appearance in our town.

Courtesy of our local fire department, jolly old Saint Nicholas fires up his sleigh for a one-time test drive throughout the local streets of our community. He is paraded through every road in town by a long line of roaring, red fire trucks. His magical sleigh is perched upon an antique fire truck that is adorned with thousands of twinkling lights.  Accompanying the Big Man in the Red Suit, is a jumbo inflatable Frosty-the-Snowman who rides in a row boat collecting toys from local citizens that will be donated to the Toys for Tots Program. The firemen blast their horns and screech their sirens waving to the hundreds of cheering residents along the way.

It is a loud and colorful procession lighting up the country streets in a fun and festive display. It is without a doubt, a dream come true for children and adults alike.

 It is impossible not to smile while watching Santa fire his way down the street in a festive flaming red fire truck. We look forward to this event every year. Even the stoic Pete can't help but smile at the sparkling spectacle.

Today, the very tall Weston takes his usual post as scout and lookout at the end of our long driveway.

He acts as a sentry
 listening for the sound of the wailing sirens.
waiting somewhat patiently in the cold, frigid air
as the rest of us wimps sit in the toasty warm car.
 
Nicholas is excited and happy.
He remembers to bring his trusty headphones
and his new toy to donate to Frosty.
This year he was a little apprehensive about relinquishing the goods.
But after a long discussion about children who do not receive presents at Christmas
the kind-hearted Nicholas quickly acquiesced
but not without asking
why on earth Santa would ever forget the children who need him most?...oy.
 
We waited for about 5 minutes,
long-enough for the wiggly Weston to require assistance from a transition tool,
his favorite item, the trusty stick
the same mainstay device you may recall,
from our summer hikes.
 
It isn't long before Weston sounds the alarm....the trucks are coming.
The rest of us join him on the cold and chilly corner.
You see.....Pete is actually smiling,
and willing to let me take his picture...!
 
The lights of the approaching vehicles are as bright as the setting sun.
When the trucks see us, they begin blasting their horns.
It is very LOUD
and Nick is happy he remembered to bring his headphones.
 
First one shiny red truck goes by
 
and then another
 
Until finally Frosty arrives with a "boat load" of toys
The boys place their toys on board
 
until at long last.....the glowing Santa Claus arrives on his sleigh
Christmas music is playing loudly as he waves to the boys
 
A few more trucks bring up the rear for Frosty and Santa
 
Until the last lighted truck passes us by
 blaring its horn in one long final good-bye
as if to say....
A Merry Christmas to all....and to all a good night.