Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 14, diagnosed with Prader-Willi Syndrome and Weston 17, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.




Wednesday, April 22, 2015

Marathon Mother

I am happy to report that although it was a wet, windy and chilly Marathon Day, Nick's teacher, Mr. P completed the race with an insanely fast time of 3:19....!

To give you an idea of how insane that is........that's 7 to 7 1/2 minute miles sustained for 26.2 miles. That is a grueling pace achieved through an unusually heroic level of mental and physical endurance.

Mr P is a true athlete.

We wish him our heartfelt congratulations on an achievement few in this world could attain.

While watching the marathon, I was struck by what I saw. There were many acts of bravery and heroics. There was selfless sacrifice, wincing pain and nothing-left endurance. There was tragedy and triumph, and the joyous exhilaration that comes from persevering through intolerable pain and overwhelming odds.

All of these heroics and hardships felt uncomfortably familiar to me as I started thinking about my own grueling pace as a special needs parent.

The road race I run to raise my children feels a lot like my own kind of marathon.

Let's see there is:

The sacrifice, the many days of forgoing fun and frolic for logging some hard core mileage.

The pain and physical toll on the body that manifests in an assortment of aches, pains or injury.

The mental preparedness needed to block out unnecessary distraction.

The bravery and intellect needed to disarm or release unsupportive others.

The focus to gather insight and develop skill.

The discipline to carry-on despite boredom, apathy, fear or unforeseen challenge.

The strength of spirit to know you are alone.

The perseverance to keep running toward that unknown finish despite pain, injury, tragedy or fatigue.

The inner determination to know that failure is not an option. 

Yes, I guess you could say I am a Marathon Mother

Running not miles but years

Toward an unknown finish

Unexpectedly finding along the way

Some true and steadfast supporters

Who make running the race of a lifetime

A little more bearable.