Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 14, diagnosed with Prader-Willi Syndrome and Weston 17, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.




Tuesday, November 3, 2015

Carry that Weight

Last night, I forgot to lock the refrigerator.

To you, that might not sound like a big deal.

But to a parent of a child diagnosed with Prader Willi Syndrome,

that little slip could have a deadly consequence.

That is the weight I carry.

It is a weight all of us in this family share.

Every evening, we must remember to lock the pantry and secure the fridge.

At one time or another, all of us have forgotten.

And every time we do, we put Nick's life in danger.

But who among us is infallible?

We are all human....aren't we?

We wonder then,

Is it just a question of time?

We live with this fear, burying it every day under a brave fa├žade,

 but it is always there.