Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 15, diagnosed with Prader-Willi Syndrome and Weston 18, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.

Saturday, January 21, 2017

Defcon 3

Children diagnosed with Prader Willi Syndrome are hungry all of the time.

The only thing that differs among them; is their drive to actively seek food.

For some it is overwhelming and immediate.
For others it is a slow progression over time.
But eventually, all of them will engage in covert eating.

We are fortunate.

While Nicholas struggles with many medical and behavioral challenges, his food seeking activities have always been mild and easily managed.

For the first 10 years of his life, we simply kept all of our food hidden away. This "out of sight, out of mind" philosophy was sufficient in keeping Nicholas safe.

With the onset of puberty however, Nick's drive became stronger, making it necessary for us to lock our refrigerator and pantry doors. But still, things like bread, butter, fruit and sugar were left out on our counter tops, safe from the grasp of our growing boy.

That is until yesterday 
when I reached for a slice of warm bread from our toaster
and noticed the empty butter dish
streaked with lines
of greasy fingerprints.
This would not be an unusual occurrence
in the Peters household
except for the sight of a well-licked spoon
resting beside it.

Oh no, I thought to myself....Nicholas!

I realized with a cold sweat and a broken heart,

I failed

I failed to protect my son from access to food.
Tears poured from my face
as I gathered the family
to explain what we all knew was coming.

It's time.

Time to secure all food in the house
and protect Nicholas for his own safety.
 No more snack packages
or half empty soda cans left by the bed side.
No sugar, salt, butter or bread left out on the counter

Nick's good health depends on our vigilance.

Mother Hubbard's cupboard
ain't got nothing on us
as we prepare to achieve
a heightened level of preparedness  
and operate at a level that is now officially at:

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