Our Journey Raising Two Children with Special Needs

This blog chronicles our life raising two children, Nicholas 15, diagnosed with Prader-Willi Syndrome and Weston 18, diagnosed with Autism/Asperger's/ADHD. It's the ups, the downs, the joys, the sorrows and most importantly, the beauty of living a life less perfect, a life more meaningful.




Thursday, March 2, 2017

The Golden Parent

Ok so when it comes to Weston's welfare, I:

fight
fight
fight
advocate
advocate
advocate
drive
drive
drive
spend hours and hours
in psychiatric hospitals and ER departments
I work behind the scenes
to develop plans with:
psychiatrists
psychologists
social-workers
counselors
physicians
nurses
dentists
principals
teachers
administrators
judges
attorneys
insurance companies
pharmacists
specialists
I selflessly sacrifice
my time, health and sanity
to ensure his life is a healthy one.

 But if you ask Weston
just who it is
 that makes him most happy?

Hands down
his answer will always be:


Dad


Wednesday, March 1, 2017

Validation

Weston is mid-way through
his court-ordered evaluation
at the collaborative school.
I am happy to report:
He is a new man.


For the first time in his life:
He looks forward to going to school.
He sits in a classroom filled with appropriate peers.
He is learning how to navigate social interactions and develop friendships.
He participates in weekly community lunch programs, field trips and local job opportunities.

He told me one day when he came home from school,

"You know what's nice about this new school Mom?"

"No, what?" I asked.

"There are a lot of kids that like me."

"That must be a nice feeling," I said.

"Yup," he replied.
"But I didn't believe it at first," he stated hesitantly.
"So I performed a little experiment," he explained.
"During lunchtime, I sat at a different table;
just to see what the kids would do.
And guess what?" he asked.

"What?" I answered.

"The whole class came over and moved their chairs to sit next to me."

I turned my face so he would not see me cry.

"Weston, there is a lot to love about you, don't ever forget that." I said.

But the sweetest moment was yet to come
 when it arrived the next day via text.

He wrote:

"I held hands with a cute girl on the bus today."


I believe he has finally found his place in this world.

On April 3, the collaborative will present to me and the school district
its final evaluation and recommendation
for Weston's transition accommodation
and future academic placement.

The school district does not, by law, need to comply with their recommendations.

Based upon our inability to agree with the district in the past,
there is a good chance we will need to meet again with the judge
at the Bureau of Special Education Appeals for resolution assistance.

But fear not my dear readers!
For inspired by Weston's profound success.....

I'm ready.